Klara’s Talent, A Children’s Book About Generalized Myasthenia Gravis
People with chronic illnesses cannot always participate in activities the way they want to, or their family needs them to. This can upset and bewilder a child and be heartbreaking for the person coping with the disease. This child-friendly picture book explains generalized myasthenia gravis (gMG), which is a progressive neuromuscular disease that affects approximately 20 in 100,000 people in the U.S. gMG can make even simple activities of daily living difficult.
Klara’s Talent was inspired by a real mom with gMG. In the story, Mama Koala cannot attend her daughter Klara’s talent show due to her gMG symptoms. So, Klara adapts and brings the show to her mom instead. Using rhyme and comforting illustrations, the book explains that people with gMG often feel weak, need rest and medicine, and are extremely fatigued. Additional gMG facts are included for the reader depending on their loved one’s comprehension level.
Klara’s Talent reassures children that they are still loved despite the obstacles gMG creates, and that, for some families, gMG and treatment are a normal part of life. Klara’s Talent embodies Alexion’s commitment to the patient community and creating disease awareness materials suitable for all ages.
Snow Companies Team:
Jon Irvine, VP, Creative Direction
Brett Moffitt, Associate Creative Director
Sofia Melgunova, Graphic Designer, Illustrator
Janet Maloney, Senior Writing Director
Aprile Cappuzzo, Writer
Carli Woodyear, Writer
Tara Giles, Studio Director
Anne Viega, Editing Director