PM360 2022 Trailblazer Awards Direct-to-Patient Campaign Gold Winner Alnylam Pharmaceuticals and Snow Companies

Genetic testing in AHP: supporting families to faster diagnosis (Alnylam Pharmaceuticals and Snow Companies)

Acute hepatic porphyria (AHP) is a family of rare genetic diseases that cause severe, potentially life-threatening attacks. The condition is commonly misdiagnosed, despite the existence of several diagnostic tests. Currently, the public knows very little about these diseases.

Patient advocacy groups have tasked themselves with educating stakeholders about the condition and the genetic aspects of the disease. However, many groups required support to educate patients and their families about the inherited aspect of the disease and the implications of this.

With its scientific expertise and its connections within the patient and caregiver community, Alnylam was well-positioned to create easy-to-use materials that would help advocacy groups provide this explanation to patients, potential patients, and their families.

Alnylam enlisted the help of Snow Companies, who collaborated with a steering committee composed of Patient Ambassadors, Patient Advocacy Leaders, and HCPs to develop an innovative Meeting in a Box. Content included an educational deck for presentations, a take-home patient brochure, a real patient story, and family mapping tools aimed at helping identify family members who might be at risk of AHP.

All the materials have been rolled out in Q1 2022 and are available for download online in English, French, German, Italian, and Spanish.

Ads

You May Also Like

PM360 2018 Trailblazer Awards Patient/Consumer Education Winner ViiV Healthcare, Snow Companies, and Havas Tonic

ViiV Healthcare Go2Events (ViiV Healthcare, Snow Companies, Havas Tonic) While 37 million people in ...

PM360 Trailblazer Awards Gala

Paying Tribute to Pharma’s Best For a full view of the entire event, winner list, sponsors and judges ...

PM360 2022 Trailblazer Awards Social Media Campaign Silver Winner Atlantis Health

Results Matter (Atlantis Health) Behavioral science company Atlantis Health used their in-house marketing expertise ...