Jessica Curran
Founder
Kindness Over Muscular Dystrophy
Duchenne Muscular Dystrophy Advocacy and Funding
On April 21, 2015, Jessica Curran’s son Conner was diagnosed with Duchenne Muscular Dystrophy. This merciless, fatal, rare genetic disorder robs children of muscular function, eventually stripping them of the ability to walk, hug, hold hands—and even so much as smile.
Conner’s giant smile has been a constant from the time he was born. Whether playing with his brothers in the snow or sand, exploring the world or, even more recently, through clinical trials, MRIs, and constant poking and prodding, always that smile. When his friends or brothers run around outside and he needs to watch and wait, still that smile. As Conner’s mother Jess explains it, “I will always carry him, always fight for him and take care of him, but I cannot smile for him.”
Jess’ personal experience drove her to start the organization Kindness Over Muscular Dystrophy (KOMD). Jess explains, “Funding research is our primary mission because those research dollars have the potential to generate a desperately needed cure for Duchenne. Kindness Over Muscular Dystrophy supports and funds key innovative research projects that show promise in the laboratory. Every kid with Duchenne has a hope that a cure is out there, and we intend to keep that hope alive with KOMD-funded research dollars.”
The organization also provides benevolent assistance, raising funds to help families purchase vital medical and accessibility equipment such as power wheelchairs, rotating beds, chair lifts, scooters, and accessible vans. Without this equipment, Duchenne patients are often isolated and unable to attend many activities we all take for granted. KOMD also advocates, attending yearly conferences in Washington, D.C. and meeting with Senators and Congress people, letting them know how healthcare laws impact families and the Duchenne community.
Jess’s tireless dedication to improving the lives of those affected by Duchenne Muscular is a shining example of what it means to be a Philanthropic Hero. She is making a real difference in the world, not just for her son, but for all those affected—and who will be affected—by this devastating disease until we find a cure.
To learn more about Conner’s fierce determination—and to take action—visit www.kindnessovermd.org.
