Kristen Baugher
Product Manager, Caregiver & Patient Marketing
Mirum Pharmaceuticals
The Caregiver’s Perspective
As a mother and caregiver for a daughter who lives with Alagille syndrome (ALGS), Kristen Baugher brings a unique perspective to her work at Mirum Pharmaceuticals on Livmarli, the only FDA-approved medicine for cholestatic pruritus itch (CP) in patients with ALGS who are 3 months of age and older. She understands what it is like to navigate a rare disorder for a child and advocate for treatments. She joined Mirum to help develop programs for caregivers and physicians to understand the true impact of CP and Livmarli as a treatment option.
Since joining Mirum, Kristen’s key focus has been developing strategies to reach caregivers and patients in their ALGS journey. Through her experience as an advocate, she acknowledged the importance of amplifying the patient’s voice, which is frequently unheard by physicians and families facing a rare disease. This insight led to the development of the Livmarli Ambassador program which included the peer program, patient videos, and Ambassador speaking events. The goal of these programs is to provide caregivers and patients the ability to connect with others who understand what they are going through and the support they need to advocate for themselves, in addition to spreading awareness of Livmarli as a treatment option.
Kristen also has a long-standing relationship with the leading advocacy organization in the ALGS space, the Alagille Syndrome Alliance (ALGSA), and partners with them on necessary resources and support for families. She is a fierce advocate for the patient and caregiver community herself and brings a patient-centered perspective to the marketing team. Her unique background as both a marketer and a caregiver has made her an effective advocate for the ALGS community and has helped Mirum disrupt the space with its innovative approach to treating CP.
As she progresses in her marketing career, Kristen is poised to bring even more to the marketing space, with a focus on programs and initiatives that are geared towards patients and caregivers.
